As mães e o cuidado ao filho com Doença Falciforme: uma compreensão a partir da fenomenologia de Heidegger

Abstract

The objective of this study was to reveal the lived experience of mothers whose chil- dren were affected by stroke due to sickle cell disease. The qualitative approach opting for phenomenology, based on the theoretical philosophical reference of Martin Heide- gger, was used as research method. The research was carried out from September 2017 to March 2018, with 10 mothers of children suffering from SCD due to Sickle Cell Disease, and who are part of the Association of People with Sickle Cell Disease in a city in the Zona da Mata Mineira. In order to reach the objective of the study, a pheno- menological interview was used, through the technique of open interview, and for the capture of the participants we used the technique of snowball sampling ("snowball"). When we inquired about the entity, immersed in its daily life, we were constructing the units of signification, in which common and different meanings of the experience of these mothers came to light on the questions that were presented. The vague and median understanding allowed the elaboration of the guiding thread towards herme- neutics. For the woman, the experience of caring for the child meant reminding the moment when the diagnosis of the disease was revealed, which caused them great impact. Her participation as the main caregiver required time, dedication and predis- position to provide care, which generated fatigue. Faith in God gave them strength to continue to care for their children and was a strategy to deal with the problems that have arisen, in which God does not allow anything to be lacking because everything comes from Him, without which they can not live. The sequelae of the Stroke were reasons for sadness, suffering and difficulty in accepting and dealing with this new reality. They reported having the support of family and friends in caring for their child, and in coping with this situation. In this lived appeared the report of having sought to educate the children in such a way to have a life closer to the normal possible.